Skip to main content

I wanted to highlight this comment to the "Over 55?" topic

Posted in
19/05/2008 22:00

I pulled this out from the comments to the "over 55?" thread as I want it to have more prominence.

"Unfortunately, this review - whilst under the guise of removing non genuine claims to DLA, whatever they may be - is unconstitutional if one refers to the letter of the law in this matter.


It is a blatant violation of human rights as well as the Disability Discrimination Act as this has not been repealed or amended to exclude HIV being defined as a Disability.

My view on this is that, unless your consultant gives your current medical diagnosis as AIDS rather than seropositive, you are on shaky ground in terms of your award remaining unchallenged.

I would be interested to see if the statistical evidence from people who have lost their awards bears this out.

I would contact NGOs such as CRUISAID as they have legal contacts who would organise a challenge to the government and are not gagged in the same way as THT. 

THT is part government funded and so is limited as to the powers that they have, other than simple advocacy.

Their remit seems to be focused on prevention of HIV rather than actual direct assistance to those living with HIV. Perhaps they fear that direct involvement, a legal challenge or letters to the DWP secretary, would endanger their funding. One can understand their reluctance to take action, even if one disagrees with it.

They were, nonetheless, consulted, as were Disabled Rights, prior to this reform's introduction.

One wonders what case they argued, and why the DWP has decided to take such a draconian line?

It is also curious that this reform comes at a time when all the gay rights pressure groups have disbanded, and NGOs gone into administration.

I note with interest that there is a pending proposal, to be ratified this year, to enforce information sharing between the DWP and CAB. This removes any impartiality that the CAB holds as it obliges them to disclose their files to the DWP if they ask for information about an individual. This violates confidentiality and privacy.

Never mind the cases where patients, dealing exclusively with their consultants, have been outed to their GPs as the DWP have not had the patience to wait for the consultant to fill in the medical forms.

In terms of a legal challenge, a law firm with a strong brief in Human Rights will mount a challenge if they can find more than 5 individual cases. Costs would likely be pro-bono as a firm would take such a case to enhance its reputation. However, this is a lengthy process and it is unlikely that, even if a motion was filed before the European Court of Human Rights, a case would be heard much before 6-12 months, and that would be after any individual arbitration of people's decisions permanently removing their DLA award.

The court has to track an action, having arisen from a decision on that course of action - a chain of events if you like, and the definable consequences of that action, before deciding if there is a case to answer.

I rather think that this is where all this is heading, in any event, as I do feel that this so called "welfare reform" is an outrage. Targeting the most vulnerable people in society who don't have a voice in parliament is, quite frankly, disgusting. As is forcing people, already in strained circumstances, into abject poverty with no hope of redemption.

There is clearly a case for differentiation. Those treatment exhausted individuals whose current medication may be working but not excluding AIDS defining illnesses, such as various cancers, are in a separate category to people newly diagnosed who have the benefit of 10 years of antiretroviral success, whose long-term survivors have paved the way, and in some cases, paid the price as their own options are now reduced.

After all, these are people's lives and no-one should simply stand down!

I would urge everyone to fight, even if you don't think you'll win. The principle has to outweigh the consequences. We elected these policy makers and they are acting in a way severely detrimental to our lives. Not right or good." 

from email

 What constitutes an AIDS diagnosis these days?


10 years ago my CD4 count was below 200 and I was admitted to Chelsea & Westminster Hospital with pneumonia. I remember in then it was regarded as an AIDS diagnosis if your CD4 was below 200. Today I am on my 4th regime and my CD4 hovers in the 300's.

Clearly my results would be very different if I were not on medication.

I have asked Graeme Moyle via his website

http://www.thebody.com/Forums/AIDS/Aging/index.html

I am HIV+ while on medication but would be considered to have AIDS if not on medication?

 

reply.

Interesting question.  I am currently engaged with the DWP to establish which guidelines they use to distinguish an AIDS diagnosis.  It seems that unless your consultant explicitly writes you have had AIDS they ignore it.

I will get back to you when I know more and they respond.

John. 

worring times ahead

I am a 56 yr old gay man diagnosed in 1997 after a seriuse illness and many blood transfusions, at the time my weight plummeted to 5stones from 9 in a matter of weeks, i am now doing ok thus far i have Psoitic Arthritic joints, also lost my partner of 32yrs to this wretched illness along with neumorouse friends,

I have moved home and tried to rebuild a new life after doctors told me i will never be able to work again a job i loved as an HGV driver. I have just recieved a revue form and am in the process the DLA have informed me they are asking my Consultant for reports,

I find it very hard dealing with day to day things though i manage quit well. I cant believe after all the trials and failure of medications that i and many like me have had to endure just to survive, we are going to be put under so much more stress, without the added stress of trying to hold down a job of work, also what  would a 56yrs man be able to undertake with an expected 9yrs left of so called working life.

Your comments

Hi,
Don't have your name, I know its very difficult, I am almost 59 and have the same problems, please share your  anxieties and talk about them, it does help, personally, I'm terrified of future prospects but we can all get through this its important to share our troubles and support each other, talking helps so much and we can support each other, I am so angry at a Government that can be so insensative but I for one will fight and there are others that will do the same, meantime keep healthy and sane and sod em.

Brian

Thanks,

Yes it is very worrying. Thank you for this. I apologise for not spotting it sooner. However please know we are, as a group, actively campaigning and your story helps create the "case histories" we need to support our arguements.

John 

Distinction beteewn HIV+ & AIDS

Dr Moyle has now answered my question, sort of. I am not any wiser as I do not think he has read my question properly. He states that the word AIDS is seldom used by himself as it is largely only relevant to government bodies controlling access to care in the U.S. Has he single handidly managed to wipe AIDS off the world map??? (sorry for the sarcasm!)

On another question about life expectancy being near normal with HAART somebody has asked how Doctors can state this when 1,000 people are still dying a year in places like NYC & London. His answer suggests that they are not Dying form HIV but from some other diseases. Surely they would not have acquired these other diseases if they were not HIV+? We all know you can not die from AIDS, there is always some primary cause of death.

I am just glad he is not my Doctor, could he be one of these people working for the Government to massage figures????

 

Distinction etc ....

Yes the DWP don't seem to acknowledge you have every had the syndrome unless your consultant has clearly mentioned the word AIDS explicitly on any medical report they may have written in support of your original claim.

If anyone has every met the criteria for this diagnosis it needs to be clear on the the information the DWP have. 

I think it is accepted that an AIDS diagnosis not only is a clear sign of a permanently damaged immune system but the likely hood of developing other conditions HIV related or Life related is much heightened as a result. Clearly to just treat HIV as a whole illness without considering the individual severity makes life easier but completely distances any decision from the truth.

Thank you for making this point.

JOhn.

 

'Death is a particular issue for the gay community'

Many gay people find themselves left out in the cold when their partner dies, even if they have been living together for decades

I am very lucky. I came out when I was 13 and have never faced any problems about being gay. Now I am 72 and living in West Yorkshire. As a theatre nurse, I worked in different hospitals across the country.

A lot of older gays are still living in the past, when they had a cloak-and-dagger lifestyle. Now, we live in a more enlightened society. But my age group remembers a time, before decriminalisation of homosexual behaviour, when you would be wary of talking to a copper.

Recently, I became a peer educator on end-of-life issues and have spoken at a conference organised by Age Concern and Help the Aged. All our lives, especially as professional people, we think ahead – but nobody talks about what they would like when the end comes. Everybody wants to go to heaven but nobody wants to die. It is not as morbid as it sounds. People live longer but not necessarily happily.

Death is a particular issue for the gay community. An awful lot of gay people have been living together for decades. It can happen that when one of the partners dies, the other is left out on the streets. Whether young or old, gay or not, when someone dies, it is a very traumatic period, especially if it is unexpected.

Staff in nursing care homes have got to be taught to accept people of different persuasions, even if they may not agree with it. I was working in a nursing home just before I retired, and people used to make snide comments about being gay. It can cause people to go back into the closet. They don't want to let it be known that they are gay because they don't want to face any aggro.

I would like my epitaph to read: "If I can't do a good turn for anybody, I would not do them a bad turn." Most importantly, I would like my partner to be included and remembered. When his previous partner died, he was left out in the cold and was very upset. I would not want that to happen again.

http://www.guardian.co.uk/society/joepublic/2009/jun/09/ageing-britain-o...

Older People and Wellbeing

Although the UK population is living longer and is in better health than ever, older people are not getting any happier. There is some evidence that older people may be becoming decreasingly satisfied, lonelier and more depressed and, due to demographic changes, there are increasing numbers of older people, many of whom are living with low levels of life satisfaction and wellbeing. This is particularly so if you are poor, isolated, in ill health, living alone, in unfit housing or rundown neighbourhoods and worse still if you are a carer or living in a care home: and all of these risk factors apply to a large proportion of the UK’s older population.

This report, the first in a series on older people and wellbeing from ippr, describes some of the key social trends in the UK and assesses how these may be impacting on older people and their wellbeing.

http://www.ippr.org.uk/publicationsandreports/publication.asp?id=620

Post new comment

The content of this field is kept private and will not be shown publicly.
CAPTCHA
This question is for testing whether you are a human visitor and to prevent automated spam submissions.
X
CAPTCHA
This question is for testing whether you are a human visitor and to prevent automated spam submissions.
Loading